How long did it take you to reach remission?

[Serinie]

Hi! I’m curious to know when people reach remission with this diet. There is no one answer and hoping to get some motivation to continue and not get on the meds. I’m into 3 months of 100 percent strict diet.

[Kate]

Hi There, at three months it's still very early. I have been on the SCD diet for almost 2 years and I kept going in and out of flares for at least the first 9 months. It works. You just need to be patient. I have been 1 year in remission with no no flare up interruption but it took me a while to get there. I know it can be very discouraging when you are being 100 strict on your diet and you don't see the results that you're hoping for, but always remind yourself that it took years for the colitis to get where it is and it will take years to reverse it. You're doing great! Hang in there!!!

[Rivmor]

Serine, I too have been on the diet strictly for 3 months now. Symptoms are gone for now and we are hopeful. So far the Doctor is OK with no meds. However he keeps saying next month, next month... Any suggestions how to avoid medication without going against Doctors orders?

[Aska]

In my opinion it’s too early to get off the medication if I remember correctly they say to be at least one year symptom free With the diet before going off the medication because you never know if the diet is working alone or it’s working with the medication so to be sure they say be 1 hear on diet before jumping off the medication but again Kk no doctor that’s my humble opinion. Good luck

[Serinie]

Thank you so much, Kate. Great to hear your positive outcome!

[Serinie]

Rivmor, I’ve done two calprotectin tests during the first three months of the diet. My inflammation marker dropped from 185 to 125 in first two months and now has dropped below 100 which means normal. Maybe ask your GI to check where your inflammation is at, and if it’s normal, you don’t need meds right now. And then keep monitoring it along with how you feel, of course.

[Rivmor]

Hi Aska,
Thanks for your response. I want to clarify. I never began any medication. I was diagnosed in August of this year , and began SCD Diet in September before the medication even got approved from insurance. Since my symptoms were gone, and lab work showed improvement the Doctor said I can wait, hold off from beginning to take the meds. I feel great and would love to continue with diet only. I'm just afraid the Doctor, will not let me go indefinitely without meds. Wondering if anyone had such an experience where diet worked before any meds began. Thank you